I went to an Adelaide Fringe show this evening which my dear friend http://kateswaffer.com/ is doing for the fringe and it is confronting, moving and totally paralysing. The dignity with which she presents this topic is only matched by her grace in her brutal honesty, “my notes are my seeing eye dog, my hearing aid or wheel chair as I have dementia and I forget” or words to that effect. It is as stunning as it is frightening.
She tells us all how hard this journey is for her from her diagnosis at 49 to now trying to manage the ever-growing symptoms at 53. She is as beautiful as ever and as my mother said, Kate is right to hear her speak so eloquently about the disease one can not see how she would have dementia. It is not a disease that disfigures your face or osteoporosis that cripples your body in her words it ‘sucks out your soul”. How cruel !
It is a show that will make you laugh with humor, is thought-provoking, it will make you uncomfortable and for me her friend it made me cry. I wanted to stop the tears but they came and they flowed, even at the end as I hugged her I was still crying. Yet there we went out to dinner after, Kate, me and her DH (Dear husband) he was also kind enough to drop me back to my car – 35 minutes from their house. I take away from that a slide and forgive me for lack of referencing and remembering who stated it “live with urgency not in an emergency” Do not wait for the diagnosis, do not wait for somebody else to sing, dance, laugh, love, be the person to send this out live like there is no tomorrow as Kate says for her that may be tomorrow. How terrifying.. she has two shows to go Monday night 530 & Tuesday night – at scot’s church on North Terrace Adelaide. She is then off to England to present over there.
My beautiful friend, I have never been prouder of you, DH & boys, I love you and will make time to see you as often as I can